Chapter Resources 

Chapter Office

75 NE 6th Ave., Suite 110
Delray Beach, FL 33483

Phone: (561) 279-8606

Business hours: Monday-Friday, 9:00 AM to 5:00 PM.

Staff members and volunteers operate the office under the direction and supervision of the Chapter.  We respond to phone, mail and walk-in inquirers and provide information and materials on Lupus and are responsible for maintaining records and files, handling requests for research of chapter library materials, checking in/out library printed materials and more.

 

Information and Referral Line

(561) 279-8606   Calls are handled by office staff during business hours. Callers after business hours may leave a message. Callers are mailed a basic package of information on LUPUS.

Fredda Steidle, Patient Education & Programs 561-313-3373  for patient inquiries, doctor referrals -

Finda Mendez, Community Education Consultant 305-632-3050.   "Se tiene alguna pregunta pueda hablar directamente con Finda Mendez al 305-632-3050."

Medical Symposium

Each year, the Chapter sponsors one or more symposiums that feature local and national speakers knowledgeable in the diagnosis, treatment and research efforts of Lupus and related disorders. Speakers include those in the specialty areas of Rheumatology, Psychiatry, Psychotherapy, and more. Nationally known authors have also been involved in presenting information on coping strategies and patient roles and responsibility. The attendance from this event has grown from its first audience of 50 to nearly 300!  Every effort is made to ensure availability of attendance slots for all who wish to attend.

 

Patient Orientation and Support Group Services

The Chapter sponsors monthly sessions for newly diagnosed patients (or those patients who have been diagnosed but are new to the self-help group experience), family members and friends. You can find out more about the time and location of this patient orientation and the local support groups on this page.
The goals of these groups include:

• Provide participants with an opportunity to receive introductory information about Lupus
  

• Encourage the expression of concerns
  

• Provide an opportunity to share experiences
  

• Encourage and support positive coping strategies that might prove useful in daily life
  

• Emphasize the importance of medical treatment
  

• Assist participant with understanding/strengthening his/her role in the health care team

 

Outreach Programs

The chapter's Outreach Program seeks to locate persons with lupus throughout the seven counties served by the chapter; to provide them with information, education and referral services; to organize and conduct support groups for lupus victims and their families; and to provide education and training to medical and other health care professionals in detecting, diagnosing and treating persons with lupus.

 

Community Education Programs

The Chapter operates a Speakers' Bureau that is made up of lay and professional speakers that are available to present information on Lupus at meetings, health fairs and workshops. The Chapter operates a Resource Library with books, brochures, audio and video tapes, and printed articles relating to Lupus.  Chapter volunteers handle requests for information on specific topics - articles are copied and mailed to the requester.  Requests can be made by calling the office at (561) 279-8606 or 1-800-339-0586 (FL only) OR by filling out this email form (or by printing it, filling it out and mailing it to our office).