75 NE 6th Ave., Suite 110
Delray Beach, FL 33483
Phone: (561) 279-8606
Business hours: Monday-Friday, 9:00 AM to 5:00 PM.
Staff members and volunteers operate the office under the
direction and supervision of the Chapter. We respond to
phone, mail and walk-in inquirers and provide information and
materials on Lupus and are responsible for maintaining records
and files, handling requests for research of chapter library
materials, checking in/out library printed materials and more.
Information and Referral Line
(561) 279-8606 Calls are
handled by office staff during business hours. Callers after
business hours may leave a message. Callers are mailed a basic
package of information on LUPUS.
Fredda Steidle, Patient Education & Programs
for patient inquiries, doctor referrals
Community Education Consultant 305-632-3050. "Se tiene alguna
pregunta pueda hablar directamente con Finda Mendez al 305-632-3050."
the Chapter sponsors one or more symposiums that feature local
and national speakers knowledgeable in the diagnosis, treatment
and research efforts of Lupus and related disorders. Speakers
include those in the specialty areas of Rheumatology,
Psychiatry, Psychotherapy, and more. Nationally known authors
have also been involved in presenting information on coping
strategies and patient roles and responsibility. The attendance
from this event has grown from its first audience of 50 to
nearly 300! Every effort is made to ensure availability of
attendance slots for all who wish to attend.
Patient Orientation and Support Group Services
The Chapter sponsors monthly
sessions for newly diagnosed patients (or those patients who
have been diagnosed but are new to the self-help group
experience), family members and friends. You can find out more
about the time and location of this patient orientation and the
local support groups on
goals of these groups include:
Provide participants with an opportunity to receive
introductory information about Lupus
Encourage the expression of concerns
Provide an opportunity to share experiences
Encourage and support positive coping strategies that
might prove useful in daily life
Emphasize the importance of medical treatment
Assist participant with understanding/strengthening
his/her role in the health care team
The chapter's Outreach Program seeks to locate
persons with lupus throughout the seven counties served by the
chapter; to provide them with information, education and referral
services; to organize and conduct support groups for lupus victims
and their families; and to provide education and training to medical
and other health care professionals in detecting, diagnosing and
treating persons with lupus.
Community Education Programs
The Chapter operates a Speakers' Bureau that is
made up of lay and professional speakers that are available to
present information on Lupus at meetings, health fairs and
workshops. The Chapter operates a Resource Library with books,
brochures, audio and video tapes, and printed articles relating to
Lupus. Chapter volunteers handle requests for information on
specific topics - articles are copied and mailed to the requester.
Requests can be made by calling the office at (561) 279-8606 or
1-800-339-0586 (FL only) OR by filling out
this email form
(or by printing it, filling it out and mailing it to our office).